 orldwide, more and more people are becoming gravely affected by increasingly severe respiratory diseases. That's one reason why Winthrop's internationally recognized Division of Pulmonary Medicine is currently participating in a three year, eight nation study, measuring the quality of life of patients suffering from severe Chronic Obstructive Pulmonary Disease and kyphoscoliosis - a spinal deformity that compresses the lungs, causing obstruction and potential chronic respiratory failure.
Winthrop is the only New York area Hospital to be selected for participation with "The QuEST Group," which includes physicians, doctoral-level scientists, bioengineers, nurse specialists, respiratory therapists, physical therapists, and statisticians from the United States, Italy, Spain, Israel, United Kingdom, Canada, The Netherlands, and The Czech Republic.
Participants are still invited to enroll in this prestigious, eight-nation trial.
Call Mara Bernstein, RT,
at 516-663-2579.
This prestigious international trial, "Quality of Life Evaluation and Survival Trial of Patients with Chronic Respiratory Failure," which originates in Italy, utilizes the 28-question "Maugeri Foundation Respiratory Failure Questionnaire" to measure the impact of specific therapies on patients; predict healthcare utilization; and investigate outcomes. The questions primarily address patients receiving long term oxygen therapy (LTOT) or overnight home mechanical ventilation (HMV), evaluating their natural history and examining long term health status changes. Each nation and participating medical facility utilize the identical questionnaire, which has been painstakingly translated.
Winthrop's team, headed by Michael Niederman, MD, Chief of the Division of Pulmonary Medicine and Critical Care Medicine, and Jonathan Ilowite, MD, Director of Pulmonary Rehabilitation, seeks the enrollment of 50 clinically appropriate patients. Each participant will respond to the questionnaire at the study's onset; again, after 15-20 days; 6 months later; and again, after 12 months. Re-evaluations will take place on the second and third anniversaries of the study.
Are you eligible to participate in the international COPD study, or do you know an appropriate person who is? Mara Bernstein, RT, Winthrop's Administrative Director of Outpatient Pulmonary Services, would like to hear from you at 516-663-2579. You'll be helping future generations of COPD patients - worldwide.
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