Generation of Survivors
Back in the Game
The mission of the Cancer Center for Kids at Winthrop-University Hospital is to provide the most up-to-date medical treatment in a caring and nurturing outpatient setting, tailored to each child’s needs.
The challenge of childhood cancer has been transformed into one of the more exciting medical success stories of the last several decades. As a result of the combined efforts of many children’s cancer centers across North America and Europe, dramatic improvements have been made in patient survival, with nearly 80% of children cured of their malignancy. These results serve to emphasize how crucial it has become for patients to be treated in a center participating in this network.
The Cancer Center for Kids is a firm believer in cooperative study partnerships, and from its inception, it has been a member of the International Cancer Institute's Children's Oncology Group. Each of our patients receives the latest treatment regimens, and most participate in national protocols that serve to further the science and treatment of childhood malignancies. All types of pediatric cancers are treated at the Center, including:
- Acute and Chronic Leukemia
- Brain Tumors
- Wilms Tumor
- Bone and Soft Tissue Tumors
- Other Rare Cancers
Winthrop's pediatric hematologists care for children with a wide range of blood disorders. Many patients on chronic transfusion therapy receive their treatment in a unique, outpatient setting that offers evening hours for patient convenience.
CCFK is a member of the Thalassemia Clinical Research Network that conducts active research and develops new treatments for patients with this inherited disorder. The Center participates in the New York State Newborn Screening Program for hemoglobinopathy that detects and treats neonates with sickle cell and other similar disorders and is approved as a New York State Hemoglobinopathy Specialty Center.
Blood disorders treated at the Center include:
- Von Willebrand's Disease
- ITP (Immune Thrombocytopenic Purpura)
- Sickle Cell Disease
- Iron Deficiency and other Anemias
- Thrombotic Disorders
- Screening tests for abnormal pre-surgical coagulation
Generation of Survivors (Gen S)
The first Survivorship Health Program of its type on Long Island
Pat Lyons Long-Term Follow-Up Program
The Generation of Survivors Clinic, held on a bi-monthly basis, provides comprehensive medical evaluations, health education and vital support services to pediatric cancer survivors. The Center's staff provides professional, compassionate care based on guidelines and standards established by The International Cancer Institute's Children's Oncology Group and other recognized authorities. Follow-up physical and psychosocial care, designed to meet the needs of patients and families who have been through the childhood cancer experience, is delivered in a quiet, relaxed atmosphere, with hours separate from those of a busy outpatient center.
In recognition of the special needs of survivors and their families, the Center's team:
All patients are seen by a board certified Pediatric Hematologist/Oncologist, a Certified Pediatric Oncology Nurse Practitioner, a psychologist and other specialists experienced in working with pediatric cancer survivors. Patients are referred to adult practitioners in specialized areas such as endocrinology, cardiology, and rheumatology on an as-needed basis.
- Offers a complete evaluation of the survivor
- Identifies and addresses potential late effects from diagnosis or treatment
- Provides up-to-date information and support for survivors and their families
- Assists survivors in accessing the many resources available to them, including referrals for assistance with education, employment and other concerns
- Provides guidance and education for living a healthy lifestyle
- Serves as consultants to the medical community
- Participates in childhood cancer research studies
All childhood cancer survivors diagnosed between infancy and 18 years of age, who are two years or more off treatment, are eligible to participate.
For more information, please call (516) 663-9400.
Back in the Game
This unique physical education training program helps young cancer patients and survivors regain fitness, strength, conditioning and confidence by introducing physical activity in a fun, safe environment.
Developed by the Professional Athletic Performance Center, and staffed by licensed physical therapists, the twelve-week Back in the Game program serves cancer patients and survivors, ages 5-21, regardless of where they are being treated. Sessions are held at the Garden City Performance Center, a 20,000-square-foot Nassau County facility, where every child can have fun, improve physical fitness, and increase his or her competitive edge.
For more information, or to enroll, please call (516) 663-9400.